Having difficulty dealing with all the different symptoms of Sjögren’s
Neuropathy indigestion headaches dry mouth. Symptoms have gotten worse since first diagnosed 6 years ago!
My doctor sees me but doesn't hear me when I say nothing is working he don't want to take me off humira and methrotrexate.Its very frustrating
, I'm sorry to hear that he is not connecting with your needs. You can search for an invested rheumatologist here: https://www.ra.com/rheumatoid-arthritis-resources/find-a-rheumatologist Keep us posted! - Warmly, Donna (Team Member)
Just been harder and harder to get through day. Only good thing is I do sleep well at night. Something I look forward to. Just hard to do anything consistently. All depends on the day!
, sleeping well at night is a bonus! Just remember to be gentle with yourself and to give yourself grace. - Warmly, Donna (Team Member)
I did a round of Retuxen therapy which really hasn’t helped that much supposed to do another round in a couple months. Take medication hydrocloraquin and gabapetin. Hadn’t really helped!
, I hope you begin getting relief with the next infusion. Riruxan can take 2-4 months till you get maximum benefits. It's a frustrating wait, but I hope it's worth it! Keep us posted. - Warmly, Donna (Team Member)
Hi
, has your doctor been able to help you be more comfortable? - Warmly, Donna (Team Member) I've been dealing with sjogrens syndrome for 10 yrs some days are better than others...I've been taking methrotrexate and humira for a while now and seems like it just stopped helping. I think my body has just gotten use to the medication.i truly need a different medication that will truly work for me I'm tired of the pain. My shoulders hurt constantly,my knees are the same way this disease is a hard one to deal with , It is frustrating and disheartening when relief abandons us. Has your doctor been open to discussions of a new treatment plan? - Warmly, Donna (Team Member)
