Fatigue and Sjögren's Disease
We know fatigue with Sjögren's disease isn't just needing a nap. How to do you manage the extreme fatigue that comes with this condition?
I think the fatigue has surprised me. I have Fibro and there is fatigue with that too. But lately the fatigue is next level. Of course I have good days and bad days but the fatigue days-I can’t do anything, it’s a chore to walk the dog-and I love my dog but….
, fatigue is the worst. It's like an otherworldly vacuum just sucking all the energy from every corner of your being. - Warmly, Donna (Team Member)
I try to push through. If I'm too quiet the body aches get worse. I need to alternate as best I can.
I've been wondering if deep tissue massages might help with both fatigue and body aches. Has anyone tried it? Might it be worth the investment?, have you found a balance that minimizes the negative effects? - Warmly, Donna (Team Member)
I try to nap but sometimes I can't but then I wait to go to bed
When I feel tired I just sit and eventually dose off for a few, once I wake up I feel better. If I’m home I don’t fight it.
I can't actually lay down , my body can't handle it . My sleep consists of being comfortable in my recliner with foot rest up and just sleeping when it happens . I only sleep about a total of 5 -6 hrs total and it pieces at a time . Any more than 6 my brain feels stupid , but only 5-6 hrs is normal for me , been that way forever . Every few days my body says lay and relax then I do , it's OK . My body and mind let me know what to do , so this is it !
