The Silent Dryness That Spoke Volumes Through My Chronic Illness JourneyI remember more than thirty years ago when I was first diagnosed with lupus. Back then, my life was filled with unexplained...reactionscomments
When Every Blink Hurts: Living With Sjögren's Eye DiseaseI've worn glasses since I was 14 years old. Eventually, I switched to contact lenses because if I needed help seeing the...reactionscomments
Lived Experiences: Popular Sjögren's Disease Community ForumsAs a newly established community, creating connection is of the utmost importance. This community is a safe space for you to share...reactionscomments
Sjogren's and Overlapping ComorbiditiesOnce you are diagnosed with one autoimmune disease, it is really common that you will be diagnosed with more. Unfortunately, I live...reactionscomments
My Most Debilitating SymptomThe worst symptom I experience with Sjogren's disease is dry mouth. It's relentless and drinking water does not help. I'm not thirsty...reactionscomments
Coping With a New Sjögren's Disease DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
I Brush My Teeth Twice a Day. So Why Am I Losing Them?People assume if your gums bleed, you must not be taking care of your teeth. I brush my teeth twice a day...reactionscomments
Coping With Brain Fog and Fatigue"I just read that last chapter, why can’t I remember what happened?" "I’ve never missed a deadline and I just forgot a...reactions1comment
Navigating Sjogren’s and Health CareWho knew my diagnosis would just be the tip of the iceberg? As if finding out I had an autoimmune disease wasn’t...reactionscomments
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with Sjogren's Disease often have a...reactionscomments
A How-To Guide for Self-AdvocacyAfter the initial shock of a chronic disease diagnosis, questions arise. What does this mean? How do I manage the symptoms? Can...reactionscomments
Sjögren's Disease and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
The Link Between Sjögren’s Syndrome and PBCPrimary biliary cholangitis (PBC) is an autoimmune condition where the body mistakenly attacks the bile ducts in the liver. PBC can put...reactionscomments
When Every Bite Hurts: Living With Sjögren's DiseaseI've been wearing braces on and off for nearly 15 years. At 46 years old, I still get the same questions: "Are...reactionscomments
How Were You Diagnosed?In a perfect world, all of the Sjogren's warriors should be diagnosed from having one of the common symptoms; excessively dry eyes...reactionscomments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like Sjogren's disease often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems...reactionscomments
When My Heart Was Trying to Tell Me It Was Sjögren's Disease220/160. Those numbers would stop almost every healthcare professional in their tracks. Every time someone wrapped a blood pressure cuff around my...reactions8comments
My Journey to Sjögren's DiseaseAt the end of 2019, I was diagnosed with my first autoimmune disease called primary biliary cholangitis (PBC). After my diagnosis, I...reactionscomments
My Experience With a Severe Sjogren’s Disease FlareA few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked...reactions4comments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactions6comments
