Cognitive decline
Hello all - l am new to this forum but not to Sjogren's .
However , at 66 my Sjogren's has worsened and l'm having serious cognitive problems ..
What l need to know is how much my cognitive decline is going to worsen? At the moment l could easily be someone in the early -mid stages of dementia - but l'm told it's not dementia ..
However l know the disease is progressive so l'm wondering how bad my cognitive decline is going to get ... Can any older people enlighten me please ?
If you have cognitive decline , please share with me how bad it is and if it has worsened over time - and how much ..
Thank you ,
cheers from Ruth
Well had Sjogrens over 20 years now. Handling the dry mouth/ dry eyes is one thing but the increasing fatigue and pain is quite another. Fatigue.. how to fix it? Do I take prednisone everyday( which I know isn’t feasible) or do I apply Voltaren gel, Dmso cream, or lots of Frankincense? And then if that barrage doesn’t work then what? That’s the $100 million dollar question and so far none of the medical or layman’s cures work. Should I stay in hot tub or take warm showers all day? Not practical for most of us. Im taking a biologic and methotrexate on a regular basis but is it working? How do I know if I quit taking all my meds if things would be much worse or if it really wouldn’t make any difference?
Sad to say we don’t know about any of the meds or if Dr really understands how Sjogrens progresses.
So all I can do is trust them and the pharmacy. I mean just the slightest change in weather- especially when rain or cold temps blow in can throw me into a severe tailspin for days. And we’re supposed to enjoy our health today because it will affect your lungs, digestive system, kidneys, maybe even heart at some point. Sucks being us! But dig in because it will and can get a lot tougher- what we think is unbearable now will be a cakewalk compared to what’s coming. But like they say it’s better than the alternative!I had blood work done for Sjogrens but I came back negative but I know I have it. I have all the symptoms
I'm going to both of them soon , that's a positive step! I hope they can bring some relief! PLease keep us posted on how you're doing. - Warmly, Donna (Team Member)
Hi Donna - thank you so much for this .. I will wade through these articles .. In the meantime l'm hoping some older Sjogren's people will reply to me ..
Thank you again !
RuthI have swelling in my throat and nose sometimes does a humidifier help it's hard to breathe and talk sometimes
Hello ? I'm not sure why you are asking me this question .. I have asked a question in my post and l'm wanting an reply to my question - l'm not wanting to answer other questions .. I think you are mistaking me for one of the admin people in here .. I am not ..
It seems like this forum is not used much ..
Ruth
Hi
, while you're wiating for feedback from the community, I wanted to share a couple of articles that may be helpful:
https://pmc.ncbi.nlm.nih.gov/articles/PMC6523842/
https://www.nature.com/articles/s4159😧22-17354-1
https://sjogrenssyndromenews.com/news/memory-problems-sjogrens-linked-global-cognitive-impairment/
- Warmly, Donna (Team Member)
