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Most Frustrating Part of Living with Sjögren's

What has been the most frustrating part of living with Sjögren's?

We're here to listen.

  1. Sialothisis 😭😭😭 && Shame based/Disgust OCD to really solidify the Fresh Hell that is now life with Sjogrens. Ironic that it's pronounced Show Guns 😂😭

  2. Yes , the pain and fatigue ! I find having to deal with my eyes , nose sores and my hypergeusia is upfront and sometimes worse . Never stops and the flares , oh man !

    1. Hi , we're glad you found us! Thank you for joining the conversation and sharing a little about your experience. - Warmly, Donna (Team Member)

  3. Overwhelming fatigue and joint pain

  4. The most frustrating part of living with Sjogrens’s is managing the many symptoms!

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