What has been the most frustrating part of living with Sjögren's?
We're here to listen.
cupcakevonsprinkleMember
Sialothisis 😭😭😭 && Shame based/Disgust OCD to really solidify the Fresh Hell that is now life with Sjogrens. Ironic that it's pronounced Show Guns 😂😭
BeverlyMember
Yes , the pain and fatigue ! I find having to deal with my eyes , nose sores and my hypergeusia is upfront and sometimes worse . Never stops and the flares , oh man !
DonnaFACommunity Admin
Hi , we're glad you found us! Thank you for joining the conversation and sharing a little about your experience. - Warmly, Donna (Team Member)
CommunityMember259c72Member
Overwhelming fatigue and joint pain
LaTanya McGillMember
The most frustrating part of living with Sjogrens’s is managing the many symptoms!